Read more at the RACE FOR ADAM website.
Friday, July 27, 2012
VW FEST 2012 and THE RACE FOR ADAM
VW FEST 2012 is fast approaching. This year the show will benefit the RACE FOR ADAM organization.
The Race for Adam Foundation, a volunteer non-profit organization
dedicated to funding research projects to find a treatment and cure for
Niemann-Pick Type C disease (NP-C) and related neurodegenerative
disorders, began in 2005. In July of that year, Sean and Amy Recke’s
seven-year old son, Adam, was diagnosed with NP-C, a genetic
neurodegenerative disorder for which there is no cure. Due to the
family’s kindness and respect for everyone, the community came together
to help them; they are a family who has shown great patience, strength
and hope in this time of urgency. Adam has touched the lives of
everyone he has met, and continues to embrace life with a perfect smile.
With the support of the community, a seed of hope has grown and
continues to branch through events that will promote awareness and
funding for research into NP-C and related neuro-degenerative
disorders. The Foundation is named in honor of Adam Recke.
Read more at the RACE FOR ADAM website.
Read more at the RACE FOR ADAM website.
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