Friday, July 27, 2012

VW FEST 2012 and THE RACE FOR ADAM

VW FEST 2012 is fast approaching.  This year the show will benefit the RACE FOR ADAM organization.


The Race for Adam Foundation, a volunteer non-profit organization dedicated to funding research projects to find a treatment and cure for Niemann-Pick Type C disease (NP-C) and related neurodegenerative disorders, began in 2005.  In July of that year, Sean and Amy Recke’s seven-year old son, Adam, was diagnosed with NP-C, a genetic neurodegenerative disorder for which there is no cure.  Due to the family’s kindness and respect for everyone, the community came together to help them; they are a family who has shown great patience, strength and hope in this time of urgency.  Adam has touched the lives of everyone he has met, and continues to embrace life with a perfect smile. With the support of the community, a seed of hope has grown and continues to branch through events that will promote awareness and funding for research into NP-C and related neuro-degenerative disorders.  The Foundation is named in honor of Adam Recke.
Read more at the RACE FOR ADAM website.

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